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Degenics

Decentralized Genetics

The Privacy-First Platform for Personal Genetic Testing.

Allows you to sequence your genome and get genetic reports anonymously.

Empowers labs of all sizes to collaborate on analyzing genetic data.

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Repo

Changelog.md

Our Story

Degenics is a group of IT consultants, blockchain developers, and biologists who are passionate about privacy, decentralized technologies, and genomic data science.

Our Vision

We aim to democratize direct-to-consumer genomics with a privacy-preserving, anonymous-first platform running on a fully decentralized, autonomous infrastructure.

Our MVP

Degenics 1.0 (private deployment + public demo March 2021) will provide anonymous, decentralised sample collection, payment, data storage, and report distribution.

It will already be

a VPN, for your DNA.

 

PERSONAL GENOMICS

Why should I sequence my genes?

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HEALTH, DIET AND BEAUTY

Determine your best nutrition, supplement, and medication strategies to maintain your health and beauty. 

Assist your medical professional by getting genome-derived insights.

Image by National Cancer Institute

FUTUREPROOFING DESCENDANTS

Preview disease and illness risks of your future children by analyzing your genes and your genetic partner's.

Prepare for certain conditions

-- from allergies to Huntington's --

and avoid other conditions via supplements and diet starting as early as possible.

Tribal Slippers

WINDOW INTO THE PAST

Sequence and maintain your personal genetic signature. to understand your particular racial heritage and family history.

Understand the routes your forebears have taken in the great human migration out of Africa.

"VPN for your DNA"

Why is it anonymous-first?

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PERSONAL GENOMICS COMPANIES OWN -- AND MONETIZE -- YOUR DATA AND PERSONAL ID.

Personal genomics companies have your DNA-KYC pairs and the potential to wield immense power over you.

Anything from providing forensic proof  in criminal cases, to tracking you offline, to printing copies of your biomaterial to fool future biometrics.

What's worse, these companies already sell users' genes to pharmacogenetics research with arguable consent.

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AVOID: THE

"GENETIC UNDERCLASS"

In the near future:

Insurance companies may utilize your genetic profile to determine  your premiums.

Companies hiring applicants may choose  on the basis of genetically-determined personality traits or the candidate's health risks.

"Do you have a history of heart disease in your family" is already a genetic question.

Bees at Work

THE "HONEYPOT PROBLEM" OF PERSONAL GENOMICS

Personal genomic companies, are already being hacked in certain cases.

The fact that massive numbers of KYC-associated genetic data are collected by these companies create a "honeypot problem": Hackers are more inclined to invest time and resources on the hack, and any minor security issue may lead to millions of data points leaking.

BLOCKCHAIN

Why decentralize the platform?

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EMPOWER DIYLabs

DIY Biology Labs have created $100 PCR devices, introduced hundreds of open-access tools, and  helped produce everything from coronavirus vaccines to many many transgenic organisms.

DIYLabs are also difficult to monetize and are usually limited to "garage-scale" hobbies.

A decentralized, merit-based blockchain platform that allows DIYLabs access to the $8billion market of personal genomics changes the value equation for these labs.  

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GENOME REUSE FOR FUTURE TESTS 

Your genome, once sequenced fully , can be reused and retested at any time. 

Gain access to insights from future genetic research, or combine your genes with your future spouse to see what your children would be like.

All done anonymously and securely, with no chance of  "vendor lock in".

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DECENTRALIZED CONFIDENCE

Degenics solves a problem with current personal genetic testing services:

Customers can't normally check the efficacy and the accuracy of the sequencing results, unless they have their own labs at home.

Degenics allows each user to recheck the results of 2 labs' test and scores each lab based on accuracy.

This is designed to maintain the quality of the test results while accelerating the growth of the ecosystem.

Core Mechanism

Trustless/Fully Decentralized Model

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Anonymous Physical-Digital Bridge

Without having to enter KYC, the user activates the dApp and generates her passphrase. This forms the basis of her private key, and is paired with a sharable public key.

The user takes two samples -- a cheek swab to be practical-- and puts them into a sample bottle each. Each sample bottle is put into its own envelope.

dApp creates an envelope label that the user can either rewrite or print on the sample envelopes. This envelope label contains her public key, no personally identifiable information and no return address, but does contain 2 lab addresses to send samples to.

User sends the two envelopes via her local post office box.

Decentralized Labs,

Sovereign Data

The aforementioned labs analyze the sample and produce datasets (VCF file & analysis).

The platform compares datasets from the  two labs and checks the difference between select points in the data.

If there is more than 10% difference, the user is given the option to send in another sample. Sampling instructions are provided again.

If there is less than 10% difference between two output datasets. both are encrypted with the user's public key and put inside the platform (Blockchain + Decentralized Storage).

User is alerted, and can access her data at any time by decrypting via private key.

Enterprise/Consortium Model

Semi-Decentralized  Deployment with 

"Lab Marketplace"

An alternative deployment model would be the private / consortium deployment where labs are directly selected by the users.

This simplifies the workflow while maintaining the anonymity of the users. The labs get access to a commercial market, and the users still get an anonymous physical-to-digital bridge for their genomic data.

Additionally, after the initial on-ramp, the labs are free to up-sell additional analytics products to the users, without resampling. 

Payment Mechanism(s)

If things are happening anonymously, how does the user/customer pay for the service?
There are two options, the traditional option or the fully decentralized option. The fully decentralized option is slightly more elegant, but this might not be an option in all locales. Traditional payment models may also work better for consortium or private deployments of Degenics.

Enterprise/Consortium Model

This model uses the traditional option:

 

Consumer funds are held in escrow by a local payment gateway or bank until the lab provides valid data (report and genome) into decentralized storage. The smart contract then triggers fund disbursement into the lab's accounts.

 

Note that this still maintains anonymity of the genomic data, since:

  • Payment gateway / bank does have access to consumer KYC, but does not have access to genomic data or reports

  • Labs does not have access to consumer KYC, although it does have access to anonymized genomic data.

Trustless/Decentralized Payments

All transactions happen via a Blockchain token model. Consumer onboards with their preferred cryptocurrency token, or goes through a fiat-to-crypto bridge to pay.

 

Smart contracts hold consumer's tokens in escrow until labs provide valid data. The smart contract then triggers fund disbursement into the labs' account

Non-Genetic Use Cases

Anonymous Medical Testing

The same platform can easily be used to anonymize the kind of testing that patients may prefer to keep private. This includes anything from COVID-19 testing to HIV testing. 

In some kinds of medical tests, even the act of testing itself is considered by users to require absolute privacy.

Privacy-First Document Digitization

Documents that need to  be digitized in private -- for example, personal hard copies of X-rays or electronic medical records -- can be redacted by the user and sent via an alternate version of the platform that provide a consortium of document digitizers.

Planned Buildout

Lab Data Interchange

The underlying infrastructure of our Blockchain platform allows multiple labs to work together within the sequencing and analysis process. Collaborations can be implemented on-platform, with complete control over work product and data. This can be done for both research and commercial reasons: A group of labs within an academic study may use the blockchain to share data and reports, or several small labs can synergize to create a product offering.

User-Sovereign Genome Monetization

Research (for heredity, rare conditions, population genetics, or pharmacogenetics) can access a slew of genomic data from the users of Degenics, and may even receive phenotype data the users consent to provide -- for a fee. This fee can be allocated through the same blockchain infrastructure that provides the data, and allows users to monetize their unique genetics in a still-anonymous, sovereign way. Any monetizable work product based on a user’s genome can be traced by the contributing user.

Need More Information?

 

Meet The Team

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Jean-Daniel Gauthier

Product Lead

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Experience Engineer. Helped create one of the first ever ICO whitepapers. Cofounder of multiple Blockchain organizations. 

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Pandu Sastrowardoyo

Initiator

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IT & Blockchain consultant and business leader. Former environmental engineer with bioinformatics course certificates and microbiology experience.   Ex-IBMer, cofounder of multiple Blockchain organizations, as seen in Forbes, CNBC, CNN, Deustche Welle, Forkast News, and many others.

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Gilang Bhagaskara

Tech Lead

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Enterprise Blockchain technology expert. Creator of Blocksphere, and initiator of multiple first-in-industry blockchain projects in the banking, FSI, supply chain, agriculture, and trading sectors.

Aaron Ting

Marketing Lead

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Seasoned marketing professional with experience in sales, marketing, business development, branding, PR and community management within the Blockchain and traditional industry.

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Muhammad Arif

Blockchain &

Back End Developer

Experienced Software Engineer with a demonstrated history of working in the hospital & health care industry. Strong engineering professional skilled in SQL, Web Applications, golang, and Node.js. 

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Bobby Andika

Developer 

Team Lead

Leader of our development team. In-depth knowledge and experience in executing multiple Blockchain projects. Also executed many IT projects from top-tier brands.

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Kevin Janada

Front-End Developer & UI Designer

Front-end developer with experience in building several decentralized web applications.

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Aloysius Dedy Cahyanto

Smart Contract Developer

 Specializes as a smart contract developer. Has experience in many blockchain projects, and also other IT Solution projects in the enterprise space.

Ibn Gamal Alhadid

In-House Biology Advisor

Biologist, fitness professional, and wellness enthusiast. Experienced in network marketing, business development and sales throughout a wide range of industries.

Serafica Alamanda

Business & QA Advisor

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Quality Assurance Professional, Business Analyst, and Consultant at Blocksphere.id. Experienced in leading the testing & QA processes for large projects in the financial, agriculture, and telco sectors.

Lydia Hildegard

Technical Advisor

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Self-proclaimed Blockchain and Cloud geek. A former developer for IBM, she is certified in Hyperledger Besu (Consensys Quorum)  and Hyperledger Fabric. 

Experienced in multiple Blockchain projects, as developer, scrum master, and lead technical consultant for Blocksphere.id

Anton Emil

Business & Ecosystem Advisor

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Blockchain tech and enterprise IT consultant at Blocksphere.id. Led project implementation and assisted in consulting workshops within multiple companies in the enterprise space, including within the FSI, govt, and asset management sectors. 

 
Consumer Reports

Your Genetic Data Isn't Safe.

"Better protections are needed for the intimate data you share when you take a direct-to-consumer genetic test."

 
 

DIYBio Resources 

Obtain Your PCR

(Genetic Sequencer)

Sample Human Genome Data 

(Mostly Anonymous)

Genomic Data Science with Galaxy

Sign Up For Our Beta!

Degenics will announce its public Beta soon! Sign up below to get an instant update when we launch.

 

If you're willing to disclose your email, go ahead and do so here.

Your name is not required, and we encourage you to use an encrypted email service if you'd like to maintain anonymity.

Thanks for submitting!

Otherwise, you may join one of our anonymous-first platforms, below.

We will never be able to view your phone number or email on these platforms, unless you choose to disclose them.

 

Telegram Degenics Channel

(Semi-anonymous,

registering for Telegram

requires phone number)

Iris.to Degenics Group

(Fully anonymous,

generates private key)

  • discord

Degenics Discord Server

(Semi-anonymous,

registering for Discord

requires email)

We welcome your business and press enquiries through Linkedin, text, or email:

Developers can star or watch our Github organizational page here:

Instagram is not anonymous, but we have fun there! Follow us:

  • Instagram

Please note that we also have an in-depth FAQ page here,

and a Medium publication here:

Join Our Consortium of Bioinformatics Labs

Are you a University, Company, or DIYBiologist doing PCR, Next Generation Sequencing, or Genomic Data Science?

Provide your details here and we'll get in touch!

Thanks for submitting!

 

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